(StatePoint) Millions of Americans will join others around the world this month in observing Rare Disease Day (February 28). They hope to help draw attention to rare diseases and the unique challenges faced by the nearly 30 million Americans affected by them.
“Rare disease patients worldwide face many similar challenges, but because their conditions are so rare, they often feel alone and isolated,” said Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders. “By standing together and sharing our experiences with rare diseases, we can more effectively address these challenges and build a better world for rare disease patients.”
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